Twitter Roundup – Discussions – 12/22/19
I’m not really understanding why hEDS/HSD need to be separated when there is currently no way to separate- if you have joint hyper mobility that is associated with symptoms, shouldn’t all...
The Ehlers Danlos Society Rareness Drama
Lots of interesting commentary on the EDS Society (TEDS) recently on Twitter. My #1 issue with them (out of a few) is still that, despite looking for & requesting links to...
ARTICLE: Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case–control comparison (2019)
A new article from Dr. Emma Reinhold & Joanne Demmler has just been published, which shows that EDS/JHS is #NotRare! And though we know it is significantly UNDERdiagnosed (only approximately 1 in 20 hEDS/HSD patients is thought...