A new article from Dr. Emma Reinhold & Joanne Demmler has just been published, which shows that EDS/JHS is #NotRare! And though we know it is significantly UNDERdiagnosed (only approximately 1 in 20 hEDS/HSD patients is thought...
Doctors and scientists I follow on twitter were talking about this video today, and I definitely recommend watching it & clicking through and reading more on the thread. Honestly, magnesium really...
This list is neither comprehensive nor carefully curated, but came of a few hours of me looking through the excessive number of groups I’m in & looking at ones recommended to...
This is an ongoing compilation of studies related to autism & ADHD in hypermobility and hereditary diseases of connective tissue (such as EDS, Marfan’s, and Osteogenesis Imperfecta). Some other neurodiverse conditions...
A friend of mine posted in the fb group EDS- Cranio Cervical Syndrome and Related Disorders about cranio-cervical instability (CCI), and I think it deserves it’s own post over here. Is there anything...