MASTERPOST: Possible Non-Genetic Causes of hEDS/HSD
Ehlers Danlos Syndrome currently has 14 subtypes, and 13 of those have genetic variants identified. hEDS, however, does not. hEDS is by far the most common form of EDS, and it’s...
Twitter Roundup: Disability Posts – 12/01/2019
Can we talk about this @NPR @MorningEdition piece on disability & student loans for a minute? It’s a topic I know a bit about: I was able to have my federal...
Twitter Roundup – Research & Discussion Threads – 12/01/19
Research Discussion Threads: My new paper w/ @JamesKilner is out in Cognition: ‘Active sampling in visual search is coupled to the cardiac cycle’. We found that saccades, fixations, and blinks are...
Link & Research Roundup – Dec 1, 2019
Weekly roundup of stuff I’ve come across in the last week worth sharing. Articles: Reply to “Concerns regarding the inference that EDS is not rare” (Nov 2019) POTS FAQ (PDF) from STARS (Syncope Trust and...
The Ehlers Danlos Society Rareness Drama
Lots of interesting commentary on the EDS Society (TEDS) recently on Twitter. My #1 issue with them (out of a few) is still that, despite looking for & requesting links to...