Cerebral Venogram/Pressure Norms
On Friday I had a cerebral angiogram/venogram to check my intracranial + jugular pressures as part of my workup for Vascular Eagle’s Syndrome. While I got the report back quite quickly,...
Twitter Roundup – Discussions – 12/22/19
I’m not really understanding why hEDS/HSD need to be separated when there is currently no way to separate- if you have joint hyper mobility that is associated with symptoms, shouldn’t all...
Twitter Roundup – Research Threads – 12/22/19
Great #PoTS Masterclass @UKPoTS @nickgall today. Here’s a few choice slides from 1st session: — Kate Barnes (@barnes_johnson) December 9, 2019 I have MANY of feelings about the latest paper out...
ARTICLE: Neurocardiogenic syncope (2004)
I was diagnosed with “vassodepressor syncope” (a type of Neurocardiogenic Syncope (NCS)) almost a decade before I started to investigate EDS, and yet I’ve recently realized that I know less about...
Weekly Google Scholar Links [EDS/HSD] – 12/16/2019
Here are some of the interesting links send to my inbox thanks go Google Scholar alerts this week! Absence of lingual frenulum in children with Ehlers-Danlos Syndrome: a retrospective study of...