Twitter Roundup – Discussions – 12/22/19

I’m not really understanding why hEDS/HSD need to be separated when there is currently no way to separate- if you have joint hyper mobility that is associated with symptoms, shouldn’t all be hEDS? What’s the benefit of separating?

— Cortney Gensemer 🔬🧬 (@GensemerCortney) December 17, 2019

So on their website today @TheEDSociety has recommended to dctrs that they use ICD 10 code M35.7 for HSD. This is code for loose ligaments and benign hypermobility. This is AFTER McGillis et all just came out with a paper saying their HSD patients are suffering.
This is dangerous

— Linda_T 🇨🇦 (@t7_linda) December 19, 2019

You know what I’ve noticed? @TheEDSociety doesn’t discuss gender non-conformity & gender dysphoria within the EDS community. Anecdotally, the numbers are high. Why are there no discussions, supports, research surrounding this group? How is their health care experience going?

— Linda_T 🇨🇦 (@t7_linda) December 20, 2019

I’m currently reading about former EDS subtypes, trying to find out why they are no longer EDS. Since , some other nerds might find it mildly interesting, thread:

— Nerdy Zebra (@nerdymedzebra) December 15, 2019