Twitter Roundup: Disability Posts – 12/01/2019

Can we talk about this @NPR @MorningEdition piece on disability & student loans for a minute?

It’s a topic I know a bit about: I was able to have my federal student loans discharged on the basis of disability only because I’m a lawyer. https://t.co/8VJwpdRJvq

— Matthew Cortland, Esq. (@mattbc) December 4, 2019

Here’s another reason medical and mental health professionals need to know what autism looks like in adults. For years, my providers listened to my very vivid descriptions of autistic experiences and told me that they were repressed sexual memories.

— The Aspergian #ShineOnMax (@theAspergianCom) December 4, 2019

In my experience as a patient, both is important.
It’s important not to dismiss patients because no diagnosis has been found.

The problem is that many decisions that affect the patient will be based upon diagnoses. Is the patient able to work? Should he be given accommodations?

— Ody_O (@OdyO11) December 2, 2019

Someone please tell me why I’m in the twilight zone of Medicine where I have to pander to my doctors possible delicate nature? I have to share science but not too much cause they might think its illness obsession? 🙄
I just want to investigate my illness’ possible causes. 😖 #ME

— Vivid Phoenix (@VividPhoenix1) December 3, 2019

… unless you fail to advocate for the sick woman or man. Discount their suffering and experiences within their body. Assume nefarious intentions. Label your ignorance of disease as their dishonesty.

On that day,

— Medical Axioms (@medicalaxioms) September 4, 2019

Retweetable:

🎶 When your gut starts to heave
Because of mold on dead leaves
Iiiit’s your mast cells

When your throat starts to swell
Because fragrances are hell
Iiiiit’s your mast cells 🎶#MCAS

— Sparrow/Liz : liminal nest (@UntoNuggan) November 28, 2019

I. Hate. It. When. Sighted. People. Say. They’re. Blind. When. They. Overlook. Or. Don’t. Notice. Something.

Please. Don’t. Do. That.

There’s. A. Difference. Between. Being. Blind. And. Not. Noticing. Something.

Do. Better!

— 🎄Mikah is blind🧑🏻‍🦯🎄 (all pronouns) (@Mikah7718) December 4, 2019

no one even knew we were scripting until we told them about it and now they’re mad.

what’s it like to make it to adulthood without realizing that language and relationships are fundamentally transactional?

— SaveTheNeurotypicals (@SNeurotypicals) December 4, 2019

Medical folks,

Our patients ALWAYS have WAY more data abt their bodies, their symptoms, & their needs than we do. The *only* way to get this critically important data is to listen & start from a place of belief. Lack of trust means no or bad data.#PatientsAreNotFaking

❤️,
j

— Josh Fessel MD PhD (@JoshFessel) November 23, 2019